The Methods Hub


Strategy for Patient Oriented Research (SPOR)


The Methods Hub activities falling under the SPOR Methods and Development platform consist of Patient-centred oriented research (PCOR). PCOR focuses on incorporating information that is important to patients, family members, caregivers and health care providers into the care of the patient. PCOR includes the engagement of patients and communities, highlighting patient engagement to inform research process.

PCOR not only capitalizes on existing data sources but also generates new evidence to provide timely and relevant information. PCOR can be conducted using prospective data collection, disease registries, electronic medical records, aggregated results from prior research, and administrative claims. The emphasis of PCOR is on the patient view, methods to integrate the collection of patient-reported outcomes (PROs) are critical.

PROs are "Any report coming directly from patients about a health condition and its treatment."

SPOR Methods and Development Activities Include: 

Environmental scan assessing the use of Patient-Reported Outcome Measures (PROMs) in the province of Alberta

We are undertaking an environmental scan to:

  1. Determine the purpose of using PROMs (research, quality improvement; clinical care)
  2. Identify the different PROMs used
  3. Explore standardization of the use of measures across the Province

If you are interested in sharing information on Alberta PROMs please email us at

World Health Organization Collaborating Centre (WHO-CC)

Hypertension Canada Outcomes Research Task Force (ORTF)

Libin Institute Analysis Centre (LIAC)

International Methodology Consortium for Coded Health Information (IMECCHI)

Data Dictionary

SAS Code

*Save page as .sas to run in SAS or cut and paste code from links*

1) Defining Chinese Ethnicity Using 1186 and 416 Surnames

2) ICD10 - ICD9 Elixhauser/Charlson coding

ICD10 Elixhauser

ICD10 Charlson 

ICD9 Enhanced Elixhauser

ICD9 Enhanced Charlson

3) Adaptation of AHRQ PSI for Use in ICD-10 Data

Adaptation Excel File

For SAS code help please e-mail Dr. Hude Quan (

An audit tool for assessing appropriateness of carotid endarterectomy

James Kennedy and Hude Quan

The objective of this project was to update appropriateness ratings for carotid endarterectomy using the best clinical evidence and to develop a tool to audit the procedure's use. A nine-member expert panel drawn from all the Canadian Specialist societies that are involved in the care of patients with carotid artery disease, used the RAND Appropriateness Methodology to rate scenarios where carotid endarterectomy may be performed. A 9-point rating scale was used that permits the categorization of the use of carotid endarterectomy as appropriate, uncertain, or inappropriate. A descriptive analysis was undertaken of the final results of the panel meeting. A database and code were then developed to rate all carotid endarterectomies performed in a Western Canadian Health region from 1997 to 2001. These expert panel ratings, based on the best evidence currently available, provide a comprehensive and updated guide to appropriate use of carotid endarterectomy. The resulting audit tool can be downloaded from the Internet and immediately used for hospital audits of carotid endarterectomy appropriateness. Instructions on using the Database and SAS code.

1) Ensure that the Database (PTMSCEDB.MDE) is located in folder D:/temp

2) Enter the data from all cases into the Microsoft Access® database following the prompts as necessary.

3) Run the SAS code.

For further information please contact Hude Quan (